The other day Luca's friend Scarlett was requesting a photo of Maya and Luca together. We don't have too many so we took one the other day. Scarlett is in it too! All three of them enjoyed going barefoot on the cozy rug.
Other happenings....
We finally had two days of sunshine and warm summer weather in Seattle. Wow, is it ever nice to feel warm! Luca loves wearing shorts, he says they are cozy. (of course)
We went the the arthrogyposis conference at Children's hospital in Seattle, this last Wednesday where we met several other families with toddlers and older kids just like Luca. It was fun to see them all doing things in their own way together. One other two year old can stand up by herself and showed Luca how she does it. Luca said, "Good job Ellie, do it again!" There was an eight year old boy there who showed us how he writes and wins coloring contests! It was quite inspirational for all the parents.
There was also a newborn and all of our hearts went out to that family in the midst of grief and trying to wrap their head around this diagnosis. We have all been there and wished we could lighten their pain somehow. We did told the mom, "These days are the hardest, it does get easier, his little body will straighten out, but it is so hard."
None of the families live in Seattle, they had traveled from Alaska, other parts of WA state and California to come to the conference. I wished we could get together more regularity as a group. Luca's little friend, Joshua with AMC was there and we were able to give them the gate trainer that was given to us. Hopefully it will be helpful for their family. There is a national annual conference for kids with arthroygposis in July. This year it is in Kansas City. Maybe we can go to it next year but I am glad we have our own in little conference here in Seattle where we don't have to travel far to attend!
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