Sunday, August 28, 2011
I don't know if you know this, but we have an incredible view from our roof. There was a amazing sunset the other night and since Luca was sleeping we decided to venture up and this is what we found. Wow, I sure wish we had a little roof top patio or something...easier said than done but what and incredible view!
Wednesday, August 24, 2011
Luca had an appointment with Dr. Mosca today to follow up with what the Dr. out in Philly had said about next steps for ideal foot correction. We hoped that Dr. Mosca would be on board with casting the left foot as the dr. in Philly recommended and Dr. Mosca agrees that is the next step. Luca will get a new series of casts starting in the end of Oct. for about three-four weeks. Then new AFO's to keep his (hopefully) more corrected foot position. I believe that the casts will only be on his left foot as his right foot still looks very good.
Friday, August 19, 2011
Hand Doctor report:
We met with the leading hand surgeon for arthrogyposis at Shriner's in Philly, Dr. Kozin. We wondered if there was anything surgically that could be done to improve Luca's hand mobility. Dr. Kozin was very nice, interacted with Luca as Luca used his hands to play and then gave him a big soft cookie to watch him feed himself. Dr. Kozin's conclusion was that there were no surgery to be done right now to Luca for Luca. He encouraged us to come back in a year or two when there may be a use for surgery depending on Luca's development. Dr. Kozin was glad to see that Luca could get his elbow to 90 degrees (passively) and his wrists to neutral (two big reasons for surgery at this age which Luca doesn't need)
I was kind of disappointed that there isn't anything that can be done for Luca's hands, but also encouraged that Luca can use his hands as well as he can and that all three hand dr. we have seen have the same option. Dr. Kozin told us to keep on doing therapy and having Luca wear his overnight hand splints.
Luca then had new "cool" hand splints made at the clinic. The whole appointment took 4 hours. Luca is a trooper!
Wednesday, August 17, 2011
Tuesday, August 9, 2011
Monday, August 8, 2011
Saturday, August 6, 2011
John, Luca and I are down in DC this weekend visiting Peter, Kara and Annalise Barrett. Luca and Annalise were dancing in this picture together as they looked at the river. It is very fun to watch them become fast friends.
Philly dr. visit:
We also went to Shiner's Hospital this last Friday. The foot doctor recommended more casting for the left foot and different AFO's. We are processing the information and were glad to get a second option. We see the hand doctor on Thursday and will let you know how that goes!