We met with the leading hand surgeon for arthrogyposis at Shriner's in Philly, Dr. Kozin. We wondered if there was anything surgically that could be done to improve Luca's hand mobility. Dr. Kozin was very nice, interacted with Luca as Luca used his hands to play and then gave him a big soft cookie to watch him feed himself. Dr. Kozin's conclusion was that there were no surgery to be done right now to Luca for Luca. He encouraged us to come back in a year or two when there may be a use for surgery depending on Luca's development. Dr. Kozin was glad to see that Luca could get his elbow to 90 degrees (passively) and his wrists to neutral (two big reasons for surgery at this age which Luca doesn't need)
I was kind of disappointed that there isn't anything that can be done for Luca's hands, but also encouraged that Luca can use his hands as well as he can and that all three hand dr. we have seen have the same option. Dr. Kozin told us to keep on doing therapy and having Luca wear his overnight hand splints.
Luca then had new "cool" hand splints made at the clinic. The whole appointment took 4 hours. Luca is a trooper!
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